Introduction
Breast cancer is a disease where treatment and survivorship care is individualised. Consumers report difficulty navigating available information to find treatment and survivorship options most appropriate for them. Consumers who feel empowered by the information they receive, rather than overwhelmed, are better able to participate in decision making throughout their breast cancer journey - from initial diagnosis through to follow-up and survivorship care.
Objectives
To develop a digital, interactive tool that provides people with access to tailored information at the time they need it. To provide information in various formats and for user groups with specific needs, including young women, Aboriginal and Torres Strait Islander women, women from CALD backgrounds, men and people living in rural areas.
Methodology
Guided by a reference group of clinicians and consumers, BCNA reviewed and updated existing resources to better meet online user needs and to deliver a user friendly, interactive digital experience to people affected by breast cancer. New information was developed to meet the specific needs of people diagnosed with DCIS.
Outcomes
Each user’s experience of the My Journey Online Tool is unique as information delivery is prioritised according to a set of criteria selected by the user. This has resulted in a ‘one stop’ tool that meets user needs at all points from diagnosis to follow-up and survivorship care.
Conclusions
The My Journey Online Tool was launched in October 2018. Using an agile methodology, the tool is managed through a process of continuous monitoring and review, with findings informing updates and future developments. Ongoing development will ensure the tool continues to meet changing needs, in particular, the provision of information that empowers people to make decisions appropriate to them at various points in their breast cancer experience.