Background:
Cancer survivors experience significant health concerns compared to the general population. Sydney Survivorship Clinic (SSC) is a multi-disciplinary clinic that aims to help survivors treated with curative intent manage side-effects, and establish a healthy lifestyle. Here we determine the health concerns of survivors post-primary treatment.
Methods:
Survivors complete questionnaires assessing: symptoms, quality of life (QOL), distress, diet, and exercise before attending SSC; and a satisfaction survey after. Body mass index (BMI), clinical findings, and recommendations were reviewed. Descriptive statistical methods were used.
Results:
Overall, 410 new patients attended SSC between September 2013-April 2018, with 385 survivors included in analysis: median age 57 years (range 18-86); 69% female; 43% breast, 31% colorectal and 19% haematological cancers. Median time from diagnosis: 12 months. Common symptoms of at least moderate severity: fatigue (45%), insomnia (37%), pain (34%), anxiety (31%); with 56% having >5 moderate-severe symptoms. Overall, 45% scored distress ≥4/10 (cut-off requiring further investigation) and 62% were rated by our clinical psychologist as having ‘fear of cancer recurrence’. Compared to a population mean of 50, the mean global QOL T-score was 47.2, with physical and emotional well-being domains most affected. Mean BMI was 28.2kg/m2 (range 17.0 – 59.1); 61% of survivors were overweight/obese. Only 31% met aerobic exercise guidelines, and 3% met guidelines for aerobic and resistance exercise. In total, 38/113 (34%) had more than two lifestyle risk factors (overweight, not meeting exercise guidelines), in addition to psychological issues (distress thermometer 4+/10, and/or rated as having fear of cancer recurrence), and five or more symptoms of at least moderate severity. Overall, 98% “agreed”/“completely agreed” attending the SSC was worthwhile, and 99% would recommend it to others.
Conclusion:
Distress, fear of cancer recurrence, fatigue, obesity and sedentary lifestyle are common in cancer survivors attending SSC and may best be addressed in a multi-disciplinary Survivorship clinic to minimise longer-term effects. This model was highly rated by survivors.